By Icon Health Publications

ISBN-10: 0585446121

ISBN-13: 9780585446127

ISBN-10: 0597830363

ISBN-13: 9780597830365

This sourcebook has been created for fogeys who've made up our minds to make schooling and Internet-based study an essential component of the remedy method. even though it supplies info precious to medical professionals, caregivers and different healthiness execs, it additionally tells mom and dad the place and the way to seem for info masking nearly all themes on the topic of mitochondrial myopathies, from the necessities to the main complicated components of analysis. The name of this e-book comprises the observe professional. This displays the truth that the sourcebook attracts from public, educational, executive, and peer-reviewed learn. chosen readings from a variety of enterprises are reproduced to offer you the various most modern reliable details on hand to this point on mitochondrial myopathies. Following an introductory bankruptcy, the sourcebook is geared up into 3 components. half I: THE necessities; bankruptcy 1. The necessities on Mitochondrial Myopathies: instructions; bankruptcy 2. looking counsel; bankruptcy three. scientific Trials and Mitochondrial Myopathies; half II: extra assets AND complex fabric; bankruptcy four. reports on Mitochondrial Myopathies; bankruptcy five. Books on Mitochondrial Myopathies; bankruptcy 6. Multimedia on Mitochondrial Myopathies; bankruptcy 7. doctor instructions and Databases; half III. APPENDICES; Appendix A. studying Your kid's drugs; Appendix B. gaining knowledge of replacement medication; Appendix C. learning meals; Appendix D. discovering clinical Libraries; Appendix E. Your kid's Rights and assurance; on-line GLOSSARIES; MITOCHONDRIAL MYOPATHIES thesaurus; INDEX. similar themes comprise: continual revolutionary exterior Ophthalmoplegia and Myopathy, persistent innovative exterior Ophthalmoplegia with Ragged pink Fibers, Fukuhara Syndrome, hereditary exterior ophthalmoplegia, Kearns-Sayre ailment, Mitochondrial Cytopathy, Kearn-Sayre kind, Mitochondrial Myopathy, Encephalopathy, Lactic Acidosis, Stroke-Like Episod, Myoclonic Epilepsy, Myoclonic innovative Familial Epilepsy, Myoclonus Epilepsy.

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The patients reported on by Biraben and others were referred to a tertiary center because of their difficult management and may constitute a particular subgroup of JME. Because there is no simple test to identify patients in this subgroup, they recommend the utmost prudence when using LTG in patients with JME. 8 references. · Psychogenic Seizures Mimicking Juvenile Myoclonic Epilepsy: Case Reports Source: Seizure. 10(3):208-211, April 2001. Summary: German researchers present case reports on two patients with psychogenic seizures that mimicked juvenile myoclonic epilepsy.

This document explains a clinical trial’s risks and benefits, the researcher’s expectations of you and your child, and your child’s rights as a patient. What Are the Risks? Clinical trials may involve risks as well as benefits. Whether or not a new treatment will work cannot be known ahead of time. There is always a chance that a new treatment may not work better than a standard treatment. There is also the possibility that it may be harmful. The treatment your child receives may cause side effects that are serious enough to require medical attention.

Your child will only be asked to participate in a clinical trial as a volunteer with your informed consent. What Are Your Child’s Rights in a Clinical Trial? If your child is eligible for a clinical trial, you will be given information to help you decide whether or not you want him or her to participate. You and your child have the right to: · Information on all known risks and benefits of the treatments in the study. · Know how the researchers plan to carry out the study, for how long, and where.

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The Official Parent's Sourcebook on Mitochondrial Myopathies: A Revised and Updated Directory for the Internet Age by Icon Health Publications


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